Data Protection Policy

Early Onset Parkinson’s Disease CLG (EOPD.ieis committed to protecting your privacy. We collect, store and use some of your personal information so we can help members of Early Onset Parkinson’s Disease through our fundraising activities. We are bound by the Data Protection Acts 1988 and 2003. 

What information is collected? 

The kind of personal information we collect to store will depend on the type of Early Onset Parkinson’s Disease CLG initiatives you support or enquire about. Personal information collected by Early Onset Parkinson’s Disease CLG may include: 

  • Your contact information, such as you name, address, email address, phone number, mobile number 
  • Your employer details, if you participate in workplace giving 
  • Your Early Onset Parkinson’s Disease CLG supporter number 
  • Your bank account details if you are a direct debit donor 
  • A history of your donations, correspondences, and other interactions with Early Onset Parkinson’s Disease CLG. 

If you choose not to provide us with certain personal information, we may not be able to process your donation or provide information on other campaigns or services you request. 

How we collect information 

There are several ways we collect information from you. These include: 

  • Directly from you when you provide information by phone, in person, via our website or email or through response forms, 
  • From third parties who organise fundraising activities on our behalf 
  • From a third party known to you who makes a donation and gives it to you or nominates you as the recipient of communication regarding that donation 
  • From our own records of how much you have donated or your level of interaction with our services 
  • From publicly available sources of information.


How information is used 

Your personal information may be used to: 

  • Process your donation or purchase and provide receipts. 
  • Provide you with information on how your donation is used.
  • Confirm your identity when you make enquiries about your donation. 
  • Communicate with you about the work that Early Onset Parkinson’s Disease is undertaking.
  • Address any feedback or complaints you may have. 
  • Answer your queries. 
  • Develop, improve and market our range of causes, events, products and services, which we believe may be of interest to you. 

If you do not want Early Onset Parkinson’s Disease to communicate with you about activities other than the one you engaged in, please email 

When we disclose personal information 

In order to communicate with you in relation to the activities of Early Onset Parkinson’s Disease CLG, we may disclose your personal information to external organisations working on our behalf. The functions of such external organisations include: 

  • Mailing operations 
  • Email services 
  • Information technology services 
  • Telecommunication services 
  • Marketing analysis services 
  • Market research 
  • Website usage analysis 
  • Call centre operations 
  • Payment of donations or products and services. 

We take reasonable steps to ensure these external organisations are contractually bound to privacy and confidentiality obligations in relation to your personal information and that it is only used for the specific purpose for which we supply it. 

Whom we may disclose your information to: 

Fraud checking organisations. 

An authorised legal representative nominated by you. 

Our accountants, auditors, and lawyers 

Law enforcement, government, or other organisations, as required by law. 

How long do we keep your information? 

We will keep and use your information after you have provided a donation, purchased a product or service, or interacted in some other way with Early Onset Parkinson’s Disease. How long we hold and use the information after you have ceased donating or interacting with us will depend on the type of interaction you had with Early Onset Parkinson’s Disease and any requirements under law. 

Privacy and the Internet 


Like most websites uses cookies. These do not harm your computer and simply allow us to deliver a personalised, responsive service as well as to improve the site by storing information about you and how you use the site. This is done by using text files called cookies which sit on your computer. You can find out more about cookies on websites like this one The cookies we use are safe and secure and will never contain any sensitive information like your payment details. 

What information is tracked by cookies? 

Early Onset Parkinson’s Disease collects statistics on visitor traffic to our website. To do this we use Google Analytics a trusted online analytical tool. All such statistics are anonymous and do not identify visitors in any way. By analysing how you and others use our site we can improve it, add more content that you like and create a better online experience for you. 

When you make a donation, your personal information is stored temporarily. This allows us to process your actual donation, to receive your contact details to save your donation and send you information such as your sponsorship documents. 

No payment details (credit / debit card) are affected by eopd.iecookies. In fact, these details are securely collected by Stripe receive your personal details (name, address etc) to match with your payment details and process your donations. All forms collecting your personal data are further secured through SSL (Secure Sockets Layer) encryption. 

How long is your data held online? 

Once your session on the internet has ended, your information collected using cookies will no longer be held. Your details are securely transferred to our office after you have confirmed these, where we handle it as described on the first pages of this document. 

How to stop cookies / tracking 

If you want to restrict, block, or delete cookies from, or any other website, you can do this in your Internet browser. Each browser is different, so check the? Help? menu to learn how to change your cookie preferences. 

Please note that your online experience on will be compromised and donations will not be processed if you disable or restrict cookies in your browser settings.  

Protecting information provided via the Internet: 

Our site uses security encrypted response forms when personal details are requested. The security we use between your browser and our web site is SSL (Secure Sockets Layer) encryption. You see this becoming active when the browser changes from http to https. 

Links with other sites 

Early Onset Parkinson’s Disease website contains links to other sites. Other sites may also have links to our website. In either case, we are not responsible for the content, privacy practices or business practices of any website or company except our own. 

Giving you control 

If you want to change any information that you have previously given us, or if you want to opt out of future communications, you can either: 

Email a request to  

Right of access 

You have a right of access to the personal information that Early Onset Parkinson’s Disease holds about you. Requests for right of access should be addressed to 

Changes to this privacy statement 

We may make changes to this policy from time to time without notice. Any changes will be reflected on this page. 

Contacting us about privacy 

If you have any questions or comments about this privacy statement or if you have a complaint about a breach of your privacy, you can contact